
Uh oh the dreaded day has come! The day the doctor decides to change my medication.
Probably seems like nothing at all to most people. For years Ive heard of other people doing it with no worry at all. But those people weren't me. Me the neurotic, obsessive, control freak. If i am late even by an hour in taking my tablets, id panic. But wait.... id never be late taking the little blue pill. I am far too uptight for that. I have an alarm set to remind me everyday to take it at the SAME time. Obsessive? Yip! Ive even heard people say 'I wasn't feeling too good today, and then I realised I have forgotten to take my tablet for a few days'. Excuse me?? How can you forget such a thing. I have realised that while i thought I was quite a chilled person in some areas, I am very highly strung in others.
There is absolutely no need for it, like with many things in my life. I have never felt a pill is the cure. But for years I have happily taken mine thinking 'ah its not doing me any harm'. Never mind the fact it probably isn't doing me any good either. 10 years Ive been on this stuff. 10 years is a looong time. Ive often been asked how long i have been on my medication and when i respond my answer is met with a raised eyebrow and a suspicious look. After 10 years why haven't my doctors changed it? Why have I not wanted it changed? My answer has always been the same, 'its never been a good time'. Always an excuse with me hey. But for years i was housebound and thought maybe the medication were keeping me sane. maybe without them Id have been an emotional wreck. Ive never been prone to depression, maybe that's because of the pills? Then my recovery began. Well I best just stay on them while i focus on my recovery. I don't need to deal with withdrawal at this time, wait till im stronger. Then Something else would come along.
We did discuss coming off them when i was pregnant but i was told they wouldn't harm the baby and it really wasn't a good time to be perhaps be feeling more anxious.
So here we are. The day has come. And how do I feel about it? Well I'm scared of course. Maybe someone else would take it in their stride but i know how my mind works. I don't know what the doctor will suggest. Will they lower the dose at first, or will they tell me to miss a tablet out here and there? Either way, on the first day that medication is lowered or missed i will be a nightmare. I'm wise enough to know it might be fine, and while its happening I will need to distract myself, keep busy. But I'm big enough to admit I ain't looking forward to it. Once again its the fear of the unknown but what i do know is that I am willing to do it.
This happened because i decided to take the bull by the horns and start fighting back again. I met with a nurse yesterday and discussed my latest situation. How ive maybe stepped back since Nathan was born. And so her first concern was my medication and contacting my doctor. Oh Lynn Lynn Lynn you did ask for it really. On a positive note i do want this. Ive heard a few people over the last year who have been put on a medication that really HAS had a positive affect on them. They are feeling happier, more positive and are out doing more than ever. Now i am not suggesting a pill is the cure, because I have ALWAYS felt its about us putting the work in. But when Ive been speaking to these people I couldn't help but wonder if it was something i should think about. Something to give me a little kick up the bum maybe. So now it looks like its happening anyway. I will no doubt keep you informed of any changes and lets keep everything crossed that its a success. At the end of the day, even if its a horrible experience, ill get by. Always do. I was bad enough trying to get ON these tablets and if i can handle that then i can deal with some heightened anxiety as i go through these changes. My medication is 30mg Seroxat a day. For my American readers I think its the equivalent of Paxil. In the 10 years since I was first prescribed this, medicine has changed and there are far more preferred drugs for people with anxiety/agoraphobia. Id go as far to say that my doctor probably wouldn't prescribe my pills to anyone these days.
I received an email the other day which some of you may be interested in. Admittedly I haven't checked the website out yet but the women was telling me some of the readers might find it helpful. It seems to be only American but its called Healthtap. They sound quite interesting and you can check out the website or the mobile app. Certified in 82 states they put '5000 Doctors at your fingertips' and according to my email, its free! So maybe take a look and see what its all about.
Wednesday, 28 September 2011
Duh Duh Duuuuuuh
Posted by Lynn at 20:41 5 comments
Friday, 16 September 2011
Back to the drawing board...Again
Posted by Lynn at 00:11 6 comments
Tuesday, 9 August 2011
A Career in Agoraphobia?
I read Nathan a bedtime story every night and so as i settled down tonight with a new book I couldn't help but laugh when I discovered the story. Not what I expected really.
'Scaredy Squirrel' by Melanie Watt. The first page describes how the little squirrel is too scared to leave his tree. He much prefers life at home, surrounded by the things he enjoys. And although his daily routine is always the same - Wake up, eat a nut, admire the view, eat a nut, admire the view, eat a nut, go to sleep - he is perfectly happy because the world beyond scares him. But even while he never leaves his tree, he has a little emergency kit... just in case. How many of us have one of these kits? A brown paper bag, medication, or mine, an ipod, wet wipes, puzzles....
One day a bee scares the squirrel and it knocks him out of his tree. He is terrified at first but after spending an hour or so in a bush playing dead, he realises that nothing bad is going to happen and so he starts to venture out more. I thought it was a very accurate description of an agoraphobic/anxiety suffers life and so i shouldn't have been surprised to discover that the author never leaves her apartment. In the authors note, it tells that she prefers to stay at home and write children's books. And judging from the amount of them on Amazon, Melanie is doing pretty well.
Are there agoraphobics out there who don't miss the outside world. Quite like the way their lives are, and just get on with it. Looks like there are, in fact I'm sure i was one of them for a while.
Which reminded me of another artist who recently contacted me via email about his talent. Charles Bryant is an American singer/songwriter and long time agoraphobia sufferer. After years of trying to get finance to make an album (and being refused) he has finally released his first CD. Visit his website www.charlesbryantmusic.com and check it out for yourself. Having listened myself i found a beautiful soulful voice and as a lover of acoustic guitar, i did enjoy the 'Agoraphobic Waltz'.
Charles wants to reach out to others and has even started his own outreach program ADAO (Agoraphobic And Disabled Artists Outreach), details of this are also on his website (or will be soon).
It saddened me to hear that this very talented man has difficulty performing in public and it makes me think things like 'what a waste', and 'its such a shame', things that have been said about myself over the years. But hopefully this talent wont go unnoticed if we all have a listen, enjoy and spread the word.
Posted by Lynn at 18:41 4 comments
Sunday, 26 June 2011
Checking In
Posted by Lynn at 18:38 3 comments
Thursday, 19 May 2011
New Beginnings
Posted by Lynn at 21:49 4 comments
Monday, 11 April 2011
Posted by Lynn at 20:17 9 comments
Monday, 21 March 2011
Toughing it Out
Well last week was hard! Anxiety was very present and you all know how scary it can be when you've been rid of it for a while. I am, without doubt, my own worst enemy! I managed to give myself an emotional beating by thinking about problems over and over and over again.
The weather was typically poor with very dull sky's and rain and then to top that off we had a day of heavy snow.
I was stuck at home although as usual i made myself walk everyday, even just a little. I was fretting that I'm not doing enough outside, Nathans not getting out enough. Is this the agoraphobia coming back (although its never fully been gone). Is this going to get worse? No I wont let that happen i will fight it. But what if its too hard? This went on for a couple of days non stop until i was fit to be tied!
Why do we do this to ourselves. It is so frustrating because I knew the whole time I was just thinking about things too much. Fretting about things that probably wont even happen and making things seem far worse than they need to be. God its so exhausting!
Eventually the anxiety came, thanks to myself. At first i was even more anxious wondering how i would cope with the inevitable panic attack, as i have never had one alone in my new house OR while I'm with Nathan. But soon i talked myself round and decided i would ride it out and that it would actually be a good thing if it happened, as i need to learn to face it again, and tough it out on my own. So i got my panic attack essentials ready. My wet wipes, for the sweats. A magazine for distraction, a glass of water and my ipod for music distraction or some Apps i could play with. Even the app for panic attacks which is a last resort usually. Oh and always in my mind is 'I will video the attack' as this in itself would be a good distraction tactic. Of course when i finally faced it and was prepared, i was no longer in such fear of it and so the panic attack never came. I did have a few mini flutters, but that was all.
I fought back by making sure i was out even more each day, it is clearly not good for me to ever be stuck in the house too long. And i went visiting people to keep myself and Nathan entertained. Also i went a drive and pushed myself a bit further as i know without doubt I'm feeling a bit more on edge because I know i should and could be doing more than I have been. It all helped and the anxiety passed. I was able to kick back at night with the knowledge that I had fought and won, and that i had done enough that day. Enough for who? Well enough for me because it seems i like to give myself a really hard time!
The rest of the week was much more relaxed but i have definitely taken a step back recently. Its such a nightmare but all we can do is preserve isn't it. There have been a few times where i have been walking and thought 'hmm I'm not feeling too good so i will just not bother going to... wherever' but i plod on anyway because i know that's the kind of avoidance behaviour that got me into this mess in the first place. I feel less guilty about Nathan because I have such great family that they are always offering to take him places. He goes out with me everyday and each grandmother once a week so he is doing and seeing everything he should be at his age. I just look forward to doing so much more. I need to get off my own back. Hes only 3 month old for goodness sake. The distance he is travelling shouldn't even be an issue!
On Friday i got a bit of worrying news. If you have been following the blog for a while you will have read me talking about my little nephew Luke. I sing his praises all the time as we are so close and he is more like a brother to me. Luke was born with spina bifida and is wheelchair bound but really he lives such a full and normal life. He is a fantastic little guy and brings happiness to so many peoples lives. However Luke has always has very sensitive hearing and doesn't enjoy things like fireworks or loud noises. Lately the bell ringing in school has been bothering him and so his parents were going to get his hearing checked again. But on Friday it went a little further. When the bell rang he suddenly got himself worked up. He couldn't breathe and it looks like he took a panic attack. Well.... this is one thing we never want to happen to any of our loved ones. Don't get me wrong there have been times i have wanted certain people to experience JUST ONE so they can see how horrific it really is. But not the kids! Poor Luke was screaming in the playground and luckily his grandfather who had just taken him to school was nearby. When he finally got to him Luke was screaming 'Don't leave me'. It took an hour and a half for him to be calmed down. Apparently he has sweat on his top lip and was shaking for a long time afterwards. So to me it definitely sounded like a panic attack.
He was taken to the doctors and the doctor gave some good advice. Well in my opinion it was good advice. His mother was going to keep him off school for the rest of the day but the doc told her to take him straight back. Since it was Friday he may has spent the weekend dreading going back and getting himself into a tizzy. The doctor explained what the breathing problem was, he hyperventilated, and told him the trick of using the paper bag. He also explained that we shouldn't make too big a deal out of this. Act normal. Because really we don't want to scare Luke. He is a sensitive wee soul and actually very easily spooked. Thankfully he went back to school and was totally fine. I called him later and although i didn't want to make too big a deal out of him i tried to explain casually that i have had many attacks myself and that they aren't so bad once you learn to cope with them. I should mention this has happened to Luke once before and so you can see why we are worried this is the beginning of a longer problem. If it was a one off due to the bell we might not be so concerned. Anyway, he wanted to come and stay with me that night. Whether that's because he wanted to talk about dealing with panic or because i am such fabulous company i don't know ha. I asked him to explain how he felt when it happened and told him about the first time i took one and to be honest he looked at me like i had 2 heads so clearly our experiences werent very similar, but id still say it was panic nonetheless. We all know it can come in many forms.
We will all be keeping a close eye on him from now on...but just from the side where he cant see us. Lets hope it doesn't happen again. How heartbreaking to watch these little innocents deal with something so horrible and to feel completely helpless. I think that's what scared me the most was that i couldn't just make this go away for him. Because really the only person who can make panic attacks go away, is the person who is taking them. So fingers crossed for little Luke.
Posted by Lynn at 18:20 5 comments





